Hereditary And Development Disorders
US Congress 117th Congress
Expressing support for the designation of June 19, 2022, as "World Sickle Cell Awareness Day" in order to increase public alertness across the United States and global community about sickle cell disease, the continued need for empirical research, early detection screenings for sickle cell trait carriers, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions related to sickle cell disease. [HR-1176]
[Healthcare ]
[Public Health ]
[Science ]
Expressing support for the designation of June 19, 2022, as "World Sickle Cell Awareness Day" in order to increase public alertness across the United States and global community about sickle cell disease, the continued need for empirical research, early detection screenings for sickle cell trait carriers, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions related to sickle cell disease.
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Gettr US Congress 117th Congress
A resolution expressing support for the designation of September 2021 as "Sickle Cell Disease Awareness Month" in order to educate communities across the United States about sickle cell disease and the need for research, early detection methods, effective treatments, and preventative care programs with respect to complications from sickle cell disease and conditions related to sickle cell disease. [SR-477]
[Healthcare ]
[Public Health ]
[Science ]
A resolution expressing support for the designation of September 2021 as "Sickle Cell Disease Awareness Month" in order to educate communities across the United States about sickle cell disease and the need for research, early detection methods, effective treatments, and preventative care programs with respect to complications from sickle cell disease and conditions related to sickle cell disease.
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US Congress 117th Congress
Cures 2.0 Act [HB-6000]
[Healthcare ]
[Pharmaceuticals ]
[Science ]
[Technology and Innovation ]
[Public Health ]
To continue the acceleration of the discovery, development, and delivery of 21st century cures, and for other purposes.
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US Congress 117th Congress
Improving the Health of Children Act [HB-5551]
[Healthcare ]
[Public Health ]
[Children and Youth ]
[Disabilities ]
To amend title III of the Public Health Service Act to reauthorize the National Center on Birth Defects and Developmental Disabilities, and for other purposes.
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US Congress 117th Congress
A resolution expressing support for the designation of September 25, 2021, as "National Ataxia Awareness Day", and raising awareness of ataxia, ataxia research, and the search for a cure. [SR-339]
[Healthcare ]
[Public Health ]
[Science ]
A resolution expressing support for the designation of September 25, 2021, as "National Ataxia Awareness Day", and raising awareness of ataxia, ataxia research, and the search for a cure.
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US Congress 117th Congress
A resolution designating September 15, 2021, as "International Myotonic Dystrophy Awareness Day" and supporting the goals and ideals of International Myotonic Dystrophy Awareness Day. [SR-336]
[Healthcare ]
[Public Health ]
A resolution designating September 15, 2021, as "International Myotonic Dystrophy Awareness Day" and supporting the goals and ideals of International Myotonic Dystrophy Awareness Day.
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US Congress 117th Congress
Expressing support for the designation of September 2021 as "Sickle Cell Disease Awareness Month" in order to educate communities across the United States about sickle cell disease and the need for research, early detection methods, effective treatments, and preventative care programs with respect to complications from sickle cell disease and conditions related to sickle cell disease. [HR-494]
[Healthcare ]
[Public Health ]
[Science ]
Expressing support for the designation of September 2021 as "Sickle Cell Disease Awareness Month" in order to educate communities across the United States about sickle cell disease and the need for research, early detection methods, effective treatments, and preventative care programs with respect to complications from sickle cell disease and conditions related to sickle cell disease.
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US Congress 117th Congress
Calling for sickle cell trait research, surveillance, and public education and awareness, and for other purposes. [HR-495]
[Healthcare ]
[Public Health ]
[Science ]
[Education ]
[Human Services ]
[Funding ]
[Grants ]
Calling for sickle cell trait research, surveillance, and public education and awareness, and for other purposes.
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US Congress 117th Congress
Medical Nutrition Equity Act of 2021 [S.2013]
[Healthcare ]
[Medicare and Medicaid ]
[Insurance ]
[Food ]
[Public Health ]
A bill to provide for the coverage of medically necessary food and vitamins and individual amino acids for digestive and inherited metabolic disorder under Federal health programs and private health insurance, to ensure State and Federal protection for existing coverage, and for other purposes.
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US Congress 117th Congress
Medical Nutrition Equity Act of 2021 [HB-3783]
[Healthcare ]
[Medicare and Medicaid ]
[Insurance ]
[Food ]
[Public Health ]
To provide for the coverage of medically necessary food and vitamins and individual amino acids for digestive and inherited metabolic disorders under Federal health programs and private health insurance, to ensure State and Federal protection for existing coverage, and for other purposes.
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US Congress 117th Congress
A resolution designating May 15, 2021, as "National MPS Awareness Day". [SR-235]
[Healthcare ]
[Human Services ]
[Public Health ]
A resolution designating May 15, 2021, as "National MPS Awareness Day".
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US Congress 117th Congress
Expressing support for the designation of May as Ehlers-Danlos Syndrome Awareness Month to increase the knowledge of this little-known, potentially fatal, genetic disease. [HR-335]
[Healthcare ]
[Public Health ]
[Human Services ]
[Disabilities ]
Expressing support for the designation of May as Ehlers-Danlos Syndrome Awareness Month to increase the knowledge of this little-known, potentially fatal, genetic disease.
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US Congress 117th Congress
Huntington’s Disease Disability Insurance Access Act of 2021 [HB-2050]
[Healthcare ]
[Medicare and Medicaid ]
[Social Security ]
[Disabilities ]
[Insurance ]
To amend title II of the Social Security Act to eliminate the five-month waiting period for disability insurance benefits under such title and waive the 24-month waiting period for Medicare eligibility for individuals with Huntington's disease.
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US Congress 117th Congress
Huntington’s Disease Disability Insurance Access Act of 2021 [S.868]
[Healthcare ]
[Medicare and Medicaid ]
[Social Security ]
[Disabilities ]
[Insurance ]
A bill to amend title II of the Social Security Act to eliminate the five-month waiting period for disability insurance benefits under such title and waive the 24-month waiting period for Medicare eligibility for individuals with Huntington's disease.
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US Congress 117th Congress
Expressing support for the designation of the last day of February each year as "Rare Disease Day". [HR-167]
[Healthcare ]
[Public Health ]
Expressing support for the designation of the last day of February each year as "Rare Disease Day".
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US Congress 117th Congress
A resolution designating February 28, 2021, as "Rare Disease Day". [SR-74]
[Healthcare ]
[Public Health ]
A resolution designating February 28, 2021, as "Rare Disease Day".
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US Congress 114th Congress
A resolution designating February 28, 2015, as "Rare Disease Day". [SR-92]
[Healthcare ]
[Public Health ]
A resolution designating February 28, 2015, as "Rare Disease Day". Designates February 28, 2015, as Rare Disease Day. Expresses support for a national and global commitment to developing new treatments, diagnostics, and cures for rare diseases and disorders.
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US Congress 114th Congress
A resolution expressing support for the designation of the month of September 2016 as "Sickle Cell Disease Awareness Month" in order to educate communities across the United States about sickle cell disease and the need for research, early detection methods, effective treatments, and preventative care programs with respect to sickle cell disease. [SR-592]
[Healthcare ]
[Public Health ]
[Human Services ]
[Race and Civil Rights ]
[Science ]
A resolution expressing support for the designation of the month of September 2016 as "Sickle Cell Disease Awareness Month" in order to educate communities across the United States about sickle cell disease and the need for research, early detection methods, effective treatments, and preventative care programs with respect to sickle cell disease. Expresses support for the goals and ideals of Sickle Cell Disease Awareness Month. (Sickle cell disease is an inherited blood disorder than can lead to pain, anemia, infections, and stroke.) Encourages
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US Congress 114th Congress
A resolution designating the month of May 2016 as "Cystic Fibrosis Awareness Month". [SR-476]
[Healthcare ]
[Public Health ]
A resolution designating the month of May 2016 as "Cystic Fibrosis Awareness Month". Designates May 2016 as Cystic Fibrosis Awareness Month. (Cystic fibrosis is an inherited disease that causes persistent lung infections and limits the ability to breathe over time.) Congratulates the individuals who care for patients with cystic fibrosis for their dedication. Recognizes that the care delivery system for cystic fibrosis can be a model for care coordination. Acknowledges the investments and scientific achievements that have improved the lives of individuals
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US Congress 114th Congress
A resolution designating February 29, 2016 as "Rare Disease Day". [SR-380]
[Healthcare ]
[Public Health ]
A resolution designating February 29, 2016 as "Rare Disease Day". Designates February 29, 2016, as Rare Disease Day. Expresses support for a national and global commitment to developing new treatments, diagnostics, and cures for rare diseases and disorders.