Hereditary And Development Disorders

Federal
US Congress 114th Congress

Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2016 [HB-3020] [Labor, Jobs, Employment ] [Healthcare ] [Medicare and Medicaid ] [Budget and Spending ] [Education ] [Public Health ] [Mental Health ] [Children and Youth ] [Human Services ] [Social Security ] [Pensions ] [Pharmaceuticals ] [Disabilities ] [Senior Citizens ] [Veterans ] [Funding ] [Grants ] [Libraries ] [Human Rights ] [Religion ]
Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2016 Provides FY2016 appropriations for the Departments of Labor, Health and Human Services, Education, and several related agencies. Department of Labor Appropriations Act, 2016 TITLE I--DEPARTMENT OF LABOR Provides FY2016 appropriations for agencies and programs within the Department of Labor. Provides appropriations to the Employment and Training Administration for: Training and Employment Services, Job Corps, Community Service Employment (continued...)

  

Sponsored by: Rep. Tom Cole The House Committee On Appropriations Reported An Original Measure, H. Rept. 114-195, By Mr. Cole. on 07/10/2015

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Federal
US Congress 114th Congress

Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2015 [HB-1849] [Healthcare ] [Public Health ] [Medicare and Medicaid ] [Science ] [Funding ] [Grants ]
Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2015 Amends the Public Health Service Act to require the Department of Health and Human Services (HHS) to establish and implement a hereditary hemorrhagic telangiectasia (HHT, a genetic vascular bleeding disorder that causes abnormalities of the blood vessels) initiative to improve early detection, screening, and treatment of people who suffer from HHT, focusing on advancing HHT research and increasing physician and public awareness of HHT. Directs HHS to establish the HHT Coordinating (continued...)

  

Sponsored by: Rep. Eleanor Norton Referred To The Subcommittee On Health. on 04/29/2015

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Federal
US Congress 114th Congress

Robin Danielson Feminine Hygiene Product Safety Act of 2015 [HB-1708] [Healthcare ] [Science ] [Public Health ] [Consumer Protection ]
Robin Danielson Feminine Hygiene Product Safety Act of 2015 Amends the Public Health Service Act to require the National Institutes of Health to provide for the conduct or support of research on the extent to which components (including contaminants and substances used as fragrances, colorants, dyes, and preservatives) in feminine hygiene products pose any risks to the health of women or the health of the children of women who use those products during or before the pregnancies involved.

  

Sponsored by: Rep. Earl Blumenauer Referred To The Subcommittee On Health. on 03/27/2015

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Federal
US Congress 114th Congress

Advancing Hope Act of 2015 [HB-1537] [Healthcare ] [Pharmaceuticals ] [Public Health ] [Children and Youth ] [Science ] [Food ]
Advancing Hope Act of 2015 This bill amends the Federal Food, Drug, and Cosmetic Act to expand the priority review voucher program for rare pediatric diseases to include treatments for sickle cell disease and pediatric cancers. The voucher program is extended by removing the provision terminating the program one year after the Food and Drug Administration's (FDA's) issuance of three rare pediatric disease vouchers. A voucher may not be issued for a rare pediatric disease product if a voucher was issued for the product as a tropical disease product. (continued...)

  

Sponsored by: Rep. Tony Cardenas Referred To The Subcommittee On Health. on 03/27/2015

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Federal
US Congress 114th Congress

Global Brain Health Act of 2015 [HB-1468] [Healthcare ] [International ] [Mental Health ] [Public Health ] [Human Services ] [Funding ] [Grants ]
Global Brain Health Act of 2015 Directs the U.S. Agency for International Development (USAID) to establish and administer a health and education grant program (Global Autism Assistance Program) to: (1) support activities by nongovernmental organizations and other service providers, including advocacy groups, focused on autism in developing countries; and (2) establish a "teach the teachers" program to train health and education professionals working with autistic children in developing countries. Amends the Foreign Assistance Act of 1961 to authorize (continued...)

  

Sponsored by: Rep. James McGovern Referred To The Subcommittee On Health. on 03/20/2015

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Federal
US Congress 113th Congress

A resolution designating December 3, 2014, as "National Phenylketonuria Awareness Day". [SR-585] [Healthcare ] [Public Health ] [Human Services ] [Disabilities ]
Designates December 3, 2014, as National Phenylketonuria Awareness Day. (Phenylketonuria or PKU is a rare, inherited metabolic disorder that can cause intellectual disability and other neurological problems.)

  

Sponsored by: Sen. Tammy Baldwin Senate Committee On The Judiciary Discharged By Unanimous Consent. (consideration: Cr S6307) on 12/03/2014

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Federal
US Congress 113th Congress

A resolution designating February 28, 2013, as "Rare Disease Day". [SR-57] [Healthcare ] [Public Health ]
Designates February 28, 2013, as Rare Disease Day. Expresses support for a national and global commitment to improving access to, and developing new treatments, diagnostics, and cures for, rare diseases and disorders.

  

Sponsored by: Sen. Sheldon Whitehouse Submitted In The Senate, Considered, And Agreed To Without Amendment And With A Preamble By Unanimous Consent. (consideration: Cr S879-880; Text As Passed Senate: Cr S878-879) on 02/26/2013

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Federal
US Congress 113th Congress

A resolution designating February 28, 2014, as "Rare Disease Day". [SR-368] [Healthcare ] [Public Health ]
Designates February 28, 2014, as Rare Disease Day. Expresses support for a national and global commitment to improving access to, and developing new treatments, diagnostics, and cures for, rare diseases and disorders.

  

Sponsored by: Sen. Dianne Feinstein Submitted In The Senate, Considered, And Agreed To Without Amendment And With A Preamble By Unanimous Consent. (consideration: Cr S1252-1253; Text As Passed Senate: Cr S1238-1239) on 02/27/2014

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Federal
US Congress 113th Congress

A resolution designating December 3, 2013, as "National Phenylketonuria Awareness Day". [SR-310] [Healthcare ] [Public Health ]
Designates December 3, 2013, as National Phenylketonuria Awareness Day.

  

Sponsored by: Sen. Tammy Baldwin Referred To The Committee On The Judiciary. (text Of Measure As Introduced: Cr S8465) on 11/21/2013

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Federal
US Congress 113th Congress

A resolution designating May 15, 2013, as "National MPS Awareness Day". [SR-142] [Healthcare ] [Public Health ]
Designates May 15, 2013, as National MPS Awareness Day (mucopolysaccharidosis) and expresses support for the goals and ideals of such Day.

  

Sponsored by: Sen. Sheldon Whitehouse Submitted In The Senate, Considered, And Agreed To Without Amendment And With A Preamble By Unanimous Consent. (consideration: Cr S3535; Text As Passed Senate: Cr S3534) on 05/15/2013

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Federal
US Congress 113th Congress

Veterans Health and Benefits Improvement Act of 2013 [S.944] [Veterans ] [Healthcare ] [Education ] [Small Business ] [Labor, Jobs, Employment ] [Military ] [Funding ] [Grants ] [Pensions ] [Sports ] [Children and Youth ] [Mental Health ] [Public Health ]
Veterans Health and Benefits Improvement Act of 2013 - Title I: Survivor and Dependent Matters - (Sec. 101) Extends the period during which additional dependency and indemnity compensation (DIC) will be paid to surviving spouses with children from two years to three years after their entitlement to DIC commences. (Sec. 102) Provides that the remarriage after age 55 of a veteran's surviving spouse shall not bar the furnishing of Department of Veterans' Affairs (VA) DIC, health care, educational assistance, and housing loans to that spouse. (Sec. (continued...)

  

Sponsored by: Sen. Bernard Sanders Committee On Veterans' Affairs. Reported By Senator Sanders With An Amendment In The Nature Of A Substitute And An Amendment To The Title. With Written Report No. 113-123. Minority Views Filed. on 12/09/2013

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Federal
US Congress 113th Congress

Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2013 [S.908] [Healthcare ] [Public Health ] [Medicare and Medicaid ] [Science ] [Funding ] [Grants ]
Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2013 - Amends the Public Health Service Act to require the Secretary of Health and Human Services (HHS) to establish and implement a hereditary hemorrhagic telangiectasia (HHT, a vascular genetic bleeding disorder that causes abnormalities of the blood vessels) initiative to assist in coordinating activities to improve early detection, screening, and treatment of people who suffer from HHT, focusing on advancing research on the causes, diagnosis, and treatment of HHT and increasing (continued...)

  

Sponsored by: Sen. Christopher Coons Read Twice And Referred To The Committee On Health, Education, Labor, And Pensions. on 05/08/2013

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Federal
US Congress 113th Congress

Improving the Lives of Children with Spina Bifida Act of 2013 [S.832] [Healthcare ] [Veterans ] [Children and Youth ] [Public Health ] [Human Services ] [Transportation and Motor Vehicles ]
Improving the Lives of Children with Spina Bifida Act of 2013 - Directs the Secretary of Veterans Affairs (VA) to carry out a three-year pilot program to assess the feasibility and advisability of providing contracted case management services (services) to individuals entitled to VA benefits as children of Vietnam and Korean War veterans born with spina bifida, and children of women Vietnam veterans born with certain birth defects who live in a rural area and have no access to such services through the VA or otherwise. Authorizes the Secretary to (continued...)

  

Sponsored by: Sen. Joe Donnelly Committee On Veterans' Affairs. Hearings Held. Hearings Printed: S.hrg. 113-203. on 05/09/2013

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Federal
US Congress 113th Congress

Survivor Benefits Improvement Act of 2013 [S.735] [Veterans ] [Healthcare ] [Mental Health ] [Children and Youth ] [Human Services ]
Survivor Benefits Improvement Act of 2013 - Allows dependency and indemnity compensation (DIC) paid through the Department of Veterans Affairs (VA) to the surviving spouses of veterans to be increased for months occurring during the five-year (under current law, two-year) period beginning on the date of entitlement. Provides that the remarriage after age 55 of the surviving spouse of a veteran shall not bar the furnishing of VA DIC, health care, educational assistance, and housing loans. Authorizes the Secretary of Veterans Affairs to provide, to (continued...)

  

Sponsored by: Sen. Bernard Sanders Committee On Veterans' Affairs. Hearings Held. Hearings Printed: S.hrg. 113-111. on 06/12/2013

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Federal
US Congress 113th Congress

Huntington's Disease Parity Act of 2013 [S.723] [Healthcare ] [Medicare and Medicaid ] [Social Security ] [Disabilities ] [Public Health ]
Huntington's Disease Parity Act of 2013 - Directs the Commissioner of Social Security, for purposes of determining cognitive, behavioral, and physical disability under titles II (Old Age, Survivors, and Disability Insurance) (OASDI) and XVI (Supplemental Security Income) (SSI) of the Social Security Act (SSA), to amend specified Listings of Impairments by providing medical and evaluation criteria for Huntington's Disease. Amends SSA title II to waive the 24-month waiting period for coverage under the Medicare program for individuals diagnosed with (continued...)

  

Sponsored by: Sen. Edward Markey Read Twice And Referred To The Committee On Finance. on 04/15/2013

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Federal
US Congress 113th Congress

National Pediatric Research Network Act of 2013 [S.424] [Healthcare ] [Public Health ] [Science ] [Funding ] [Grants ] [Children and Youth ] [Pharmaceuticals ]
National Pediatric Research Network Act of 2013 - Amends the Public Health Service Act to authorize the Director of the National Institutes of Health (NIH), in carrying out the Pediatric Research Initiative, to act through the Director of the Eunice Kennedy Shriver National Institute of Child Health and Human Development to provide for the establishment of a National Pediatric Research Network. Authorizes the Director of the Institute to award funding to public or private nonprofit entities for: (1) planning, establishing, or strengthening pediatric (continued...)

  

Sponsored by: Sen. Robert Casey Read Twice And Referred To The Committee On Health, Education, Labor, And Pensions. on 02/28/2013

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Federal
US Congress 113th Congress

Juvenile Justice and Delinquency Prevention Reauthorization Act of 2014 [S.2999] [Crime ] [Children and Youth ] [Criminal Justice ] [Public Safety ]
Juvenile Justice and Delinquency Prevention Reauthorization Act of 2014

  

Sponsored by: Sen. Chuck Grassley Read Twice And Referred To The Committee On The Judiciary. on 12/11/2014

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Federal
US Congress 113th Congress

Toxic Exposure Research Act of 2014 [S.2738] [Veterans ] [Public Health ] [Military ] [Healthcare ] [Science ]
Toxic Exposure Research Act of 2014 - Directs the Secretary of Veterans Affairs to select a medical center in the Department of Veterans Affairs (VA) to serve as the national center for research on the diagnosis and treatment of health conditions of descendants (i.e., a biological child, grandchild, or great-grandchild) of individuals exposed to toxic substances while serving as members of the Armed Forces that are related to that exposure. Requires the national research center to employ at least one licensed clinical social worker to coordinate (continued...)

  

Sponsored by: Sen. Susan Collins Read Twice And Referred To The Committee On Veterans' Affairs. on 07/31/2014

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Federal
US Congress 113th Congress

Protecting Our Infants Act of 2014 [S.2722] [Healthcare ] [Public Health ] [Children and Youth ] [Overdose Prevention ] [Pharmaceuticals ]
Protecting Our Infants Act of 2014 - Requires the Secretary of Health and Human Services (HHS) to study maternal opiate abuse and neonatal abstinence syndrome, identify gaps in evidence-informed recommendations for health care professionals and facilities regarding neonatal abstinence syndrome, and identify priority areas for additional research. Requires the Director of the Centers for Disease Control and Prevention (CDC) to assist states in collecting data on neonatal abstinence syndrome, including incidence, causes, and demographics. Directs (continued...)

  

Sponsored by: Sen. Mitch McConnell Read Twice And Referred To The Committee On Health, Education, Labor, And Pensions. (text Of Measure As Introduced: Cr S5221-5222) on 07/31/2014

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Federal
US Congress 113th Congress

PREEMIE Reauthorization Act [S.252] [Healthcare ] [Science ] [Public Health ] [Children and Youth ] [Funding ] [Grants ]
Title I: PREEMIE Act Reauthorization - Prematurity Research Expansion and Education for Mothers who deliver Infants Early Reauthorization Act or the PREEMIE Reauthorization Act - (Sec. 102) Amends the Prematurity Research Expansion and Education for Mothers who deliver Infants Early Act to revise and reauthorize requirements for research on prematurity and preterm births. Authorizes the Director of the Centers for Disease Control and Prevention (CDC) to: (1) conduct epidemiological studies (as currently required) on the clinical, biological, social, (continued...)

  

Sponsored by: Sen. Jack Reed Became Public Law No: 113-55. on 11/27/2013

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