Hereditary And Development Disorders

Federal
US Congress 113th Congress

Avonte's Law Act of 2014 [HB-5209] [Crime ] [Disabilities ] [Public Safety ] [Children and Youth ] [Human Services ] [Education ] [Mental Health ]
Avonte's Law Act of 2014 - Amends the Omnibus Crime Control and Safe Streets Act of 1968 to authorize the Attorney General to make grants to law enforcement agencies to: (1) reduce the risk of injury and death relating to the wandering characteristics of some individuals with autism and other disabilities, and (2) safeguard the well-being of individuals with disabilities during interactions with law enforcement. Requires grant awards to be used to: (1) provide education and resources to law enforcement agencies, first responders, schools, clinicians, (continued...)

  

Sponsored by: Rep. Peter King Referred To The Subcommittee On Crime, Terrorism, Homeland Security, And Investigations. on 09/26/2014

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Federal
US Congress 113th Congress

Coordinated Recovery Initiative for Babies Act of 2014 [HB-4888] [Healthcare ] [Public Health ] [Children and Youth ] [Human Services ] [Pharmaceuticals ] [Mental Health ]
Coordinated Recovery Initiative for Babies Act of 2014 or the CRIB Act of 2014 - Directs the Secretary of Health and Human Services (HHS) to study the treatment and surveillance of, and available information concerning, neonatal abstinence syndrome (a group of problems occurring in a newborn who was exposed to addictive drugs while in the mother's womb). Requires the Secretary to establish an advisory panel to identify and compile best practices and to disseminate the practices, including through the public HHS website. Requires a review of the (continued...)

  

Sponsored by: Rep. Mike Quigley Sponsor Introductory Remarks On Measure. (cr H5882) on 07/09/2014

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Federal
US Congress 113th Congress

Robin Danielson Act of 2014 [HB-4746] [Healthcare ] [Public Health ] [Science ] [Children and Youth ]
Robin Danielson Act of 2014 - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH) to provide for the conduct or support of research on the extent to which components, including contaminants and substances used as fragrances, in feminine hygiene products pose any risks to the health of women or the health of the children of women who use those products during or before the pregnancies involved.

  

Sponsored by: Rep. Earl Blumenauer Referred To The Subcommittee On Health. on 05/30/2014

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Federal
US Congress 113th Congress

Autism CARES Act of 2014 [HB-4631] [Healthcare ] [Science ] [Public Health ] [Mental Health ] [Human Services ] [Disabilities ] [Education ] [Children and Youth ]
Autism Collaboration, Accountability, Research, Education, and Support Act of 2014 or the Autism CARES Act of 2014 - (Sec. 2) Requires the Secretary of Health and Human Services (HHS) to designate an official to oversee national autism spectrum disorder (ASD) research, services, and support activities. Directs the official to implement such activities taking into account the strategic plan developed by the Interagency Autism Coordinating Committee (the Interagency Committee) and ensure that duplication of activities by federal agencies is minimized. (continued...)

  

Sponsored by: Rep. Mike Quigley Became Public Law No: 113-157. on 08/08/2014

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Federal
US Congress 113th Congress

Caring for Military Children with Developmental Disabilities Act of 2014 [HB-4630] [Healthcare ] [Military ] [Children and Youth ] [Disabilities ] [Veterans ] [Public Health ]
Caring for Military Children with Developmental Disabilities Act of 2014 - Includes in the treatment of military dependents' developmental disabilities under the Department of Defense (DOD) TRICARE program behavioral health treatment, including applied behavior analysis, that is prescribed by a physician or psychologist. Makes such behavioral health treatment available to retired members of the Coast Guard, the Commissioned Corps of the National Oceanic and Atmospheric Administration (NOAA), the Commissioned Corps of Public Health Service, or their (continued...)

  

Sponsored by: Rep. Raul Grijalva Referred To The Subcommittee On Military Personnel. on 06/20/2014

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Federal
US Congress 113th Congress

Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2014 [HB-4592] [Healthcare ] [Public Health ] [Medicare and Medicaid ] [Science ] [Funding ] [Grants ]
Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2014 - Amends the Public Health Service Act to require the Secretary of Health and Human Services (HHS) to establish and implement a hereditary hemorrhagic telangiectasia (HHT, a vascular genetic bleeding disorder that causes abnormalities of the blood vessels) initiative to assist in coordinating activities to improve early detection, screening, and treatment of people who suffer from HHT, focusing on advancing research on the causes, diagnosis, and treatment of HHT and increasing (continued...)

  

Sponsored by: Rep. Gerald Connolly Referred To The Subcommittee On Health. on 05/09/2014

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Federal
US Congress 113th Congress

Howard P. "Buck" McKeon National Defense Authorization Act for Fiscal Year 2015 [HB-4435] [Defense ] [Military ] [National Security ] [Cybersecurity ] [Aerospace ] [Science ] [Technology and Innovation ] [Budget and Spending ] [Veterans ] [Healthcare ] [Mental Health ] [Law Enforcement ] [Public Safety ] [Construction ] [Environmental ] [Energy ] [Transportation and Motor Vehicles ] [Labor, Jobs, Employment ] [Small Business ] [Manufacturing ]
Howard P. "Buck" McKeon National Defense Authorization Act for Fiscal Year 2015 - Division A: Department of Defense Authorizations - Title I: Procurement - Subtitle A: Authorization of Appropriations - (Sec. 101) Authorizes appropriations for FY2015 for procurement for the Army, Navy and Marine Corps, Air Force, and Defense-wide activities, as specified in the funding tables in Division D, Title XLI, of this Act. Subtitle B: Army Programs - (Sec. 111) Prohibits any funds authorized or made available for FY2015 for aircraft procurement, Army, for (continued...)

  

Sponsored by: Rep. Adam Smith Received In The Senate. Read Twice. Placed On Senate Legislative Calendar Under General Orders. Calendar No. 425. on 06/05/2014

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Federal
US Congress 113th Congress

Autism Services and Workforce Acceleration Act of 2014 [HB-4010] [Healthcare ] [Public Health ] [Mental Health ] [Disabilities ] [Education ] [Human Services ] [Children and Youth ]
Autism Services and Workforce Acceleration Act of 2014 - Amends the Public Health Service Act to require the Administrator of the Health Resources and Services Administration (HRSA) to establish a demonstration project for the implementation of an Autism Care Program to provide grants and other assistance to improve the effectiveness and efficiency in providing comprehensive care to individuals diagnosed with autism spectrum disorders and their families. Sets forth eligibility requirements for the Program. Requires the Secretary of Health and Human (continued...)

  

Sponsored by: Rep. Matthew Cartwright Referred To The Subcommittee On Health. on 02/07/2014

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Federal
US Congress 113th Congress

Global Autism Assistance Act of 2013 [HB-3054] [Healthcare ] [International ] [Human Services ] [Education ] [Public Health ] [Mental Health ] [Children and Youth ] [Disabilities ] [Grants ]
Directs the Administrator for the U.S. Agency for International Development (USAID) to establish and administer a health and education grant program (Global Autism Assistance Program) to: (1) support activities by nongovernmental organizations and other service providers, including advocacy groups, focused on autism in developing countries; and (2) establish a "teach the teachers" program to train health and education professionals working with autistic children in developing countries.

  

Sponsored by: Rep. Michael Doyle Referred To The House Committee On Foreign Affairs. on 08/02/2013

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Federal
US Congress 113th Congress

National Pediatric Research Network Act of 2013 [HB-225] [Healthcare ] [Public Health ] [Science ] [Funding ] [Grants ] [Children and Youth ] [Pharmaceuticals ]
National Pediatric Research Network Act of 2013 - Amends the Public Health Service Act to authorize the Director of the National Institutes of Health (NIH), in carrying out the Pediatric Research Initiative, to act through the Director of the Eunice Kennedy Shriver National Institute of Child Health and Human Development to provide for the establishment of a National Pediatric Research Network. Authorizes the Director of the Institute to award funding to public or private nonprofit entities for: (1) planning, establishing, or strengthening pediatric (continued...)

  

Sponsored by: Rep. Janice Schakowsky Received In The Senate And Read Twice And Referred To The Committee On Health, Education, Labor, And Pensions. on 02/07/2013

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Federal
US Congress 113th Congress

Newborn Screening Saves Lives Reauthorization Act of 2014 [HB-1281] [Healthcare ] [Public Health ] [Science ] [Children and Youth ]
Newborn Screening Saves Lives Reauthorization Act of 2014 - (Sec. 2) Amends the Public Health Service Act to revise and extend through FY2019 a grant program for screening, counseling, and other services related to heritable disorders that can be detected in newborns. Allows grants to be used to improve timeliness of newborn screening and provide training to health care professionals on the importance of timely screening and on the sharing of medical and diagnostic information with providers and families. (Sec. 3) Extends through FY2019 a grant (continued...)

  

Sponsored by: Rep. Raul Grijalva Became Public Law No: 113-240. on 12/18/2014

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Federal
US Congress 113th Congress

Huntington's Disease Parity Act of 2013 [HB-1015] [Healthcare ] [Medicare and Medicaid ] [Social Security ] [Disabilities ] [Public Health ]
Huntington's Disease Parity Act of 2013 - Directs the Commissioner of Social Security, for purposes of determining cognitive, behavioral, and physical disability under titles II (Old Age, Survivors, and Disability Insurance) (OASDI) and XVI (Supplemental Security Income) (SSI) of the Social Security Act (SSA), to amend specified Listings of Impairments by providing medical and evaluation criteria for Huntington's Disease. Amends SSA title II to waive the 24-month waiting period for coverage under the Medicare program for individuals diagnosed with (continued...)

  

Sponsored by: Rep. Ted Poe Referred To The Subcommittee On Health. on 03/12/2013

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Federal
US Congress 116th Congress

Health Equity and Accountability Act of 2020 [S.4819] [Healthcare ] [Public Health ] [Race and Civil Rights ]
A bill to improve the health of minority individuals, and for other purposes.

  

Sponsored by: Sen. Cory Booker Read Twice And Referred To The Committee On Finance. (sponsor Introductory Remarks On Measure: Cr S6331-6332) on 10/20/2020

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Federal
US Congress 112th Congress

A resolution designates February 28, 2011, as "Rare Disease Day". [SR-74] [Healthcare ] [Public Health ]
Designates February 28, 2011, as Rare Disease Day. Recognizes the importance of improving awareness and encouraging accurate and early diagnosis of rare diseases and disorders. Expresses support for a global commitment to improving access to, and developing new treatments, diagnostics, and cures for, rare diseases and disorders.

  

Sponsored by: Sen. Sherrod Brown Submitted In The Senate, Considered, And Agreed To Without Amendment And With A Preamble By Unanimous Consent. (consideration: Cr S924-926; Text As Passed Senate: Cr S925; Text Of Measure As Introduced: Cr S919) on 02/17/2011

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Federal
US Congress 112th Congress

A resolution designating December 3, 2012, as "National Phenylketonuria Awareness Day". [SR-563] [Healthcare ] [Public Health ]
Designates December 3, 2012, as National Phenylketonuria Awareness Day.

  

Sponsored by: Sen. Johnny Isakson Submitted In The Senate, Considered, And Agreed To Without Amendment And With A Preamble By Unanimous Consent. (consideration: Cr S6469-6472; Text As Passed Senate: Cr S6470; Text Of Measure As Introduced: Cr S6465) on 09/19/2012

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Federal
US Congress 112th Congress

A resolution designating the week of September 16, 2012, as "Mitochondrial Disease Awareness Week", reaffirming the importance of an enhanced and coordinated research effort on mitochondrial diseases, and commending the National Institutes of Health for its efforts to improve the understanding of mitochondrial diseases. [SR-490] [Healthcare ] [Public Health ] [Science ]
Designates the week of September 16, 2012, as Mitochondrial Disease Awareness Week. Reaffirms the importance of an enhanced and coordinated research effort aimed at improving the understanding of primary mitochondrial diseases and the development of treatments and cures. Commends the National Institutes of Health (NIH) for its efforts to organize a symposium to improve the understanding of mitochondrial diseases and to enhance collaboration and chart a course for future mitochondrial disease research. Encourages NIH to place a greater priority on (continued...)

  

Sponsored by: Sen. Dianne Feinstein Senate Committee On Health, Education, Labor, And Pensions Discharged By Unanimous Consent. (consideration: Cr S6870-6871) on 11/15/2012

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Federal
US Congress 112th Congress

A resolution designating May 15, 2012, as "National MPS Awareness Day". [SR-450] [Healthcare ] [Public Health ]
Designates May 15, 2012, as National MPS Awareness Day (mucopolysaccharidosis) and expresses support for the goals and ideals of such Day.

  

Sponsored by: Sen. Richard Burr Submitted In The Senate, Considered, And Agreed To Without Amendment And With A Preamble By Unanimous Consent. (consideration: Cr S3049-3050; Text As Passed Senate: Cr S3049; Text Of Measure As Introduced: Cr S3047) on 05/09/2012

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Federal
US Congress 112th Congress

A resolution supporting the designation of April 2012 as National Autism Awareness Month. [SR-413] [Healthcare ] [Public Health ] [Mental Health ] [Human Services ] [Disabilities ] [Children and Youth ] [Education ]
Expresses support for designating April 2012 as National Autism Awareness Month. Commends individuals living with autism and their relatives for their sacrifice and dedication in providing for the special needs of autistic individuals. Recognizes: (1) that autism is a major public health crisis; (2) that meeting the needs of autistic individuals is a compelling public policy issue that requires a rapid national response; (3) that individuals and families are desperate to access services that presently are inadequate; (4) the need to begin early (continued...)

  

Sponsored by: Sen. Robert Casey Referred To The Committee On Health, Education, Labor, And Pensions. (text Of Measure As Introduced: Cr S2258) on 03/29/2012

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Federal
US Congress 112th Congress

A resolution designating February 29, 2012, as "Rare Disease Day". [SR-383] [Healthcare ] [Public Health ]
Designates February 29, 2012, as Rare Disease Day. Recognizes the importance of improving awareness and encouraging accurate and early diagnosis of rare diseases and disorders. Expresses support for the commitment of the United States and all countries to improving access to, and developing new treatments, diagnostics, and cures for, rare diseases and disorders.

  

Sponsored by: Sen. Sherrod Brown Submitted In The Senate, Considered, And Agreed To Without Amendment And With A Preamble By Unanimous Consent. (consideration: Cr S1143-1144; Text As Passed Senate: Cr S1143-1144; Text Of Measure As Introduced: Cr S1150-1151) on 02/29/2012

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Federal
US Congress 112th Congress

A resolution recognizing May 16, 2012, as Hereditary Angioedema Awareness Day and expressing the sense of the Senate that more research and treatments are needed for Hereditary Angioedema. [SR-286] [Healthcare ] [Public Health ]
Recognizes May 16, 2012, as Hereditary Angioedema Awareness Day. Expresses support for increased awareness of Hereditary Angioedema by physicians and the public.

  

Sponsored by: Sen. Daniel Inouye Senate Committee On The Judiciary Discharged By Unanimous Consent. on 01/31/2012

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