Hereditary And Development Disorders
US Congress 116th Congress
Expressing support for the designation of the last day of February each year as "Rare Disease Day". [HR-161]
[Healthcare ]
[Public Health ]
This resolution expresses support for (1) the designation of Rare Disease Day; and (2) a national and global commitment to developing new treatments, diagnostics, and cures for rare diseases and disorders.
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A resolution designating February 28, 2019, as "Rare Disease Day". [SR-90]
[Healthcare ]
[Public Health ]
This resolution (1) designates February 28, 2019, as Rare Disease Day; (2) recognizes the importance of improving awareness and encouraging accurate and early diagnosis of rare diseases and disorders; and (3) expresses support for a national and global commitment to developing new treatments, diagnostics, and cures for rare diseases and disorders.
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US Congress 116th Congress
Ensuring Lasting Smiles Act [HB-1379]
[Healthcare ]
[Insurance ]
[Consumer Protection ]
[Public Health ]
[Children and Youth ]
[Disabilities ]
Requires private health insurance plans to cover diagnosis and treatment services for congenital anomalies and birth defects, such as reconstructive services and prosthetics. Coverage must include services that functionally improve, repair, or restore any body part that is medically necessary for normal bodily functions or appearance, as determined by the treating physician.
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US Congress 116th Congress
Ensuring Lasting Smiles Act [S.560]
[Healthcare ]
[Insurance ]
[Public Health ]
[Children and Youth ]
[Disabilities ]
Requires private health insurance plans to cover diagnosis and treatment services for congenital anomalies and birth defects, such as reconstructive services and prosthetics. Coverage must include services that functionally improve, repair, or restore any body part that is medically necessary for normal bodily functions or appearance, as determined by the treating physician.
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US Congress 116th Congress
Aidan’s Law [HB-534]
[Healthcare ]
[Public Health ]
[Children and Youth ]
Authorizes newborn screenings for adrenoleukodystrophy (also known as ALD), which is a hereditary condition that damages the insulating membrane of nerve cells in the brain. The bill authorizes hospitals, child care centers, clinics, and similar institutions to test newborns for ALD in accordance with state protocols; such protocols must be approved by the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children. The bill also reauthorizes for FY2020-FY2023 the heritable disorders screening program for newborns and children
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US Congress 115th Congress
Global Brain Health Act of 2017 [HB-4621]
[Healthcare ]
[International ]
[Mental Health ]
[Public Health ]
[Human Services ]
[Children and Youth ]
[Funding ]
[Grants ]
Global Brain Health Act of 2017 This bill directs the U.S. Agency for International Development (USAID) to establish the Global Autism Assistance Program to: (1) support activities by nongovernmental organizations and other service providers focused on autism in developing countries, and (2) establish a "teach the teachers" program to train health and education professionals working with such children. The President may provide assistance to support a network of trained medical practitioners to treat hydrocephalus in children at pediatric hospitals
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US Congress 115th Congress
A resolution expressing support for the designation of September 2017 as "Sickle Cell Disease Awareness Month" in order to educate communities across the United States about sickle cell disease and the need for research, early detection methods, effective treatments, and preventative care programs with respect to sickle cell disease, complications from sickle cell disease, and conditions related to sickle cell disease. [SR-273]
[Healthcare ]
[Public Health ]
[Race and Civil Rights ]
[Human Services ]
A resolution expressing support for the designation of September 2017 as "Sickle Cell Disease Awareness Month" in order to educate communities across the United States about sickle cell disease and the need for research, early detection methods, effective treatments, and preventative care programs with respect to sickle cell disease, complications from sickle cell disease, and conditions related to sickle cell disease. Expresses support for the goals and ideals of Sickle Cell Disease Awareness Month. (Sickle cell disease is an inherited blood disorder
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US Congress 115th Congress
A resolution designating February 28, 2018, as "Rare Disease Day". [SR-423]
[Healthcare ]
[Public Health ]
A resolution designating February 28, 2018, as "Rare Disease Day". Designates February 28, 2018, as Rare Disease Day. Expresses support for a national and global commitment to developing new treatments, diagnostics, and cures for rare diseases and disorders.
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US Congress 115th Congress
Aidan's Law [HB-5453]
Aidan's Law
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US Congress 115th Congress
Huntington's Disease Parity Act of 2017 [HB-2589]
[Healthcare ]
[Medicare and Medicaid ]
[Social Security ]
[Disabilities ]
Huntington's Disease Parity Act of 2017 This bill amends title II (Old-Age, Survivors, and Disability Insurance) (OASDI) of the Social Security Act to waive, for individuals diagnosed with Huntington's Disease, the 24-month waiting period for Medicare coverage. Current law generally applies this waiting period to individuals deemed eligible for OASDI benefits.
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US Congress 115th Congress
Medical Nutrition Equity Act of 2017 [HB-2587]
[Healthcare ]
[Medicare and Medicaid ]
[Insurance ]
[Food ]
Medical Nutrition Equity Act of 2017 This bill provides for coverage, under Medicare, Medicaid, other specified federal health-care programs, and private health insurance, of foods and vitamins that are medically necessary for the management of certain digestive and metabolic disorders and conditions.
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US Congress 115th Congress
Medical Nutrition Equity Act of 2017 [S.1194]
[Healthcare ]
[Medicare and Medicaid ]
[Insurance ]
[Food ]
Medical Nutrition Equity Act of 2017 This bill provides for coverage, under Medicare, Medicaid, other specified federal health-care programs, and private health insurance, of foods and vitamins that are medically necessary for the management of certain digestive and metabolic disorders and conditions.
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US Congress 115th Congress
Expressing support for a month to be known as Cystic Fibrosis Awareness Month, and for other purposes. [HCR-58]
[Healthcare ]
[Public Health ]
Expressing support for a month to be known as Cystic Fibrosis Awareness Month, and for other purposes. Supports the designation of Cystic Fibrosis Awareness Month. (Cystic fibrosis is an inherited disease that causes persistent lung infections and limits the ability to breathe over time.) Congratulates the cystic fibrosis community for their dedication to patients. Recognizes that the care delivery system for cystic fibrosis can be a model for care coordination. Acknowledges the investments and scientific achievements that have improved the lives
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US Congress 115th Congress
A resolution designating February 28, 2017, as "Rare Disease Day". [SR-73]
[Healthcare ]
[Public Health ]
A resolution designating February 28, 2017, as "Rare Disease Day". Designates February 28, 2017, as Rare Disease Day. Expresses support for a national and global commitment to developing new treatments, diagnostics, and cures for rare diseases and disorders.
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US Congress 115th Congress
Expressing support for the designation of the last day of February each year, as "Rare Disease Day". [HR-157]
[Healthcare ]
[Public Health ]
Expressing support for the designation of the last day of February each year, as "Rare Disease Day". Expresses support for: (1) the designation of Rare Disease Day; and (2) a national and global commitment to developing new treatments, diagnostics, and cures for rare diseases and disorders.
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US Congress 115th Congress
HIRE Vets Act Honoring Investments in Recruiting and Employing American Military Veterans Act of 2017 [HB-244]
[Veterans ]
[Labor, Jobs, Employment ]
[Military ]
[Budget and Spending ]
[Agriculture ]
[Food ]
[Telecommunications ]
[Technology and Innovation ]
[Trade ]
[Defense ]
[Energy ]
[Environmental ]
[Healthcare ]
[Science ]
[Cybersecurity ]
[National Security ]
[Construction ]
[Transportation and Motor Vehicles ]
[Small Business ]
[Economic Development ]
[Funding ]
[Grants ]
[Public Health ]
[Manufacturing ]
[Alcoholic Beverages ]
[Animals ]
[Water ]
[Housing ]
[Law Enforcement ]
[Criminal Justice ]
[Education ]
[Race and Civil Rights ]
[Human Rights ]
[Disaster Relief ]
[Inflation ]
[Taxes ]
[Medicare and Medicaid ]
[Public Safety ]
[Arts and Culture ]
[Consumer Protection ]
[Data Privacy ]
[Workers' Compensation ]
[Senior Citizens ]
[Pharmaceuticals ]
HIRE Vets Act Honoring Investments in Recruiting and Employing American Military Veterans Act of 2017 (Sec. 3) Provides that references to "this Act" included in any division of this bill refer only to the provisions of the division unless the bill expressly provides otherwise. (Sec. 4) Provides that the explanatory statement printed in the Congressional Record regarding this bill has the same effect as a joint explanatory statement of a committee of conference. (Sec. 5) Provides that the sums in this bill are appropriated for FY2017. (Sec. 6) Provides
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US Congress 115th Congress
Robin Danielson Feminine Hygiene Product Safety Act of 2017 [HB-2379]
[Healthcare ]
[Public Health ]
[Science ]
[Consumer Protection ]
[Children and Youth ]
Robin Danielson Feminine Hygiene Product Safety Act of 2017 This bill amends the Public Health Service Act to require the National Institutes of Health to conduct or support research on the extent to which components (including contaminants and substances used as fragrances, colorants, dyes, and preservatives) in feminine hygiene products pose health risks to women who use the products or to the children of women who use the products during or before pregnancy.
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US Congress 115th Congress
Expressing support for designation of May 30 as "National Bartter Syndrome Day". [HR-301]
[Healthcare ]
[Public Health ]
[Human Services ]
[Science ]
[Disabilities ]
Expressing support for designation of May 30 as "National Bartter Syndrome Day". Supports the designation of National Bartter Syndrome Day. (Bartter syndrome is caused by genetic defects that affect kidney function. Symptoms include muscle weakness and growth delay.)