Hereditary And Development Disorders

Federal
US Congress 112th Congress

National Autism Spectrum Disorders Initiative Act of 2011 [HB-2006] [Healthcare ] [Public Health ] [Mental Health ] [Science ] [Human Services ] [Disabilities ] [Children and Youth ]
National Autism Spectrum Disorders Initiative Act of 2011 - Amends the Public Health Service Act to establish the National Autism Spectrum Disorders Initiative in the Office of the Secretary of Health and Human Services (HHS) to improve the lives of persons with autism spectrum disorders through research focused on prevention, treatment, services, and cures. Requires the Secretary to: (1) act as the primary federal official with responsibility for overseeing all NIH research on autism spectrum disorders; (2) approve the autism spectrum disorder (continued...)

  

Sponsored by: Rep. Michael Doyle Referred To The Subcommittee On Health. on 06/03/2011

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Federal
US Congress 112th Congress

Combating Autism Reauthorization Act of 2011 [HB-2005] [Healthcare ] [Public Health ] [Science ] [Disabilities ] [Children and Youth ]
Combating Autism Reauthorization Act of 2011 - Amends the Public Health Service Act to extend and reauthorize through FY2014: (1) the surveillance and research program for autism spectrum disorder and other developmental disabilities; (2) the education, early detection, and intervention program for autism spectrum disorder and other developmental disabilities; and (3) the Interagency Autism Coordinating Committee.

  

Sponsored by: Rep. Barbara Lee Signed By President. on 09/30/2011

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Federal
US Congress 112th Congress

Children's Access to Reconstructive Evaluation & Surgery (CARES) Act of 2011 [HB-1955] [Healthcare ] [Insurance ] [Children and Youth ] [Public Health ]
Children's Access to Reconstructive Evaluation & Surgery (CARES) Act of 2011 - Amends the Public Health Service Act, the Employee Retirement Income Security Act of 1974 (ERISA), and the Internal Revenue Code to require a group or individual health plan that covers surgical benefits to also cover outpatient and inpatient diagnosis and treatment of a congenital or developmental deformity, disease, or injury of a minor child (defined as child under the age of 22). Requires that such coverage: (1) be subject to pre-authorization or pre-certification (continued...)

  

Sponsored by: Rep. Barbara Lee Referred To The Subcommittee On Health, Employment, Labor, And Pensions. on 09/08/2011

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Federal
US Congress 112th Congress

Medicare IVIG Access and Strengthening Medicare and Repaying Taxpayers Act of 2012 [HB-1845] [Healthcare ] [Medicare and Medicaid ] [Insurance ]
Medicare IVIG Access and Strengthening Medicare and Repaying Taxpayers Act of 2012 - Title I: Medicare IVIG Access - (Sec. 101) Directs the Secretary of Health and Human Services (HHS) to establish a three-year demonstration project under part B (Supplementary Medical Insurance) of title XVIII (Medicare) of the Social Security Act (SSA) to evaluate the benefits of providing payment for items and services needed for the in-home administration of intravenous immune globin (IVIG) for the treatment of primary immune deficiency diseases. Requires the (continued...)

  

Sponsored by: Rep. Raul Grijalva Became Public Law No: 112-242. on 01/10/2013

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Federal
US Congress 111th Congress

A resolution designating May 15, 2010, as "National MPS Awareness Day". [SR-528] [Healthcare ] [Public Health ]
Designates May 15, 2010, as National MPS Awareness Day (mucopolysaccharidosis) and expresses support for the goals and ideals of such Day.

  

Sponsored by: Sen. Richard Burr Submitted In The Senate, Considered, And Agreed To Without Amendment And With A Preamble By Unanimous Consent. (consideration: Cr S3790-3792; Text As Passed Senate: Cr S3791; Text Of Measure As Introduced: Cr S3785-3786) on 05/14/2010

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Federal
US Congress 111th Congress

A resolution recognizing June 2010 as National Hereditary Hemorrhagic Telangiecstasia (HHT) month established to increase awareness of HHT, which is a complex genetic blood vessel disorder that affects approximately 70,000 people in the United States. [SR-508] [Healthcare ] [Public Health ] [Science ]
Expresses support for the designation of June 2010 as National Hereditary Hemorrhagic Telangiecstasia (HHT) month. Recognizes: (1) the need to pursue research to find better treatments and a cure for HHT; (2) the HHT Foundation International as the only U.S. advocacy organization working to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected; (3) the importance of comprehensive care centers in providing complete care and treatment for HHT patients; (4) that stroke, lung, and brain hemorrhages (continued...)

  

Sponsored by: Sen. Tim Johnson Senate Committee On Health, Education, Labor, And Pensions Discharged By Unanimous Consent. on 05/26/2010

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Federal
US Congress 111th Congress

A resolution designating May 2010 as "National X and Y Chromosomal Variations Awareness Month". [SR-506] [Healthcare ] [Public Health ]
Designates May 2010 as National X and Y Chromosomal Variations Awareness Month.

  

Sponsored by: Sen. Benjamin Cardin Referred To The Committee On The Judiciary. (text Of Measure As Introduced: Cr S2812) on 04/29/2010

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Federal
US Congress 111th Congress

A resolution designating September 2009 as "Tay-Sachs Awareness Month". [SR-227] [Healthcare ] [Public Health ]
Designates September 2009 as Tay-Sachs Awareness Month.

  

Sponsored by: Sen. Sherrod Brown Read Twice And Referred To The Committee On The Judiciary. (text Of Measure As Introduced: Cr S8278) on 07/29/2009

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Federal
US Congress 111th Congress

A resolution designating March 31, 2010, as "National Congenital Diaphragmatic Hernia Awareness Day". [SR-204] [Healthcare ] [Public Health ] [Human Services ] [Children and Youth ]
Designates March 31, 2010, as National Congenital Diaphragmatic Hernia Awareness Day.Recognizes the need for additional research into a cure for the congenital diaphragmatic hernia birth defect.

  

Sponsored by: Sen. Jeff Sessions Senate Committee On The Judiciary Discharged By Unanimous Consent. (consideration: Cr S2325-2326) on 04/14/2010

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Federal
US Congress 111th Congress

A resolution recognizing June 2009 as the first National Hereditary Hemorrhagic Telangiecstasia (HHT) month, established to increase awareness of HHT, which is a complex genetic blood vessel disorder that affects approximately 70,000 people in the United States. [SR-161] [Healthcare ] [Public Health ] [Science ]
Expresses support for the designation of June 2009 as National Hereditary Hemorrhagic Telangiecstasia (HHT) month. Recognizes: (1) the need to pursue research to find better treatments and a cure for HHT; (2) the HHT Foundation International as the only U.S. advocacy organization working to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected; (3) the importance of comprehensive care centers in providing complete care and treatment for HHT patients; (4) that stroke, lung, and brain hemorrhages (continued...)

  

Sponsored by: Sen. Mark Warner Submitted In The Senate, Considered, And Agreed To Without Amendment And With A Preamble By Unanimous Consent. (consideration: Cr S5885; Text As Passed Senate: Cr S5885; Text Of Measure As Introduced: Cr S5877) on 05/21/2009

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US Congress 111th Congress

A resolution designating May 15, 2009, as "National MPS Awareness Day". [SR-143] [Healthcare ] [Public Health ]
Designates May 15, 2009, as National MPS Awareness Day (mucopolysaccharidosis) and expresses support for the goals and ideals of such Day.

  

Sponsored by: Sen. Susan Collins Submitted In The Senate, Considered, And Agreed To Without Amendment And With A Preamble By Unanimous Consent. (consideration: Cr S5394-5395; Text As Passed Senate: Cr S5394-5395; Text Of Measure As Introduced: Cr S5377-5378) on 05/12/2009

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Federal
US Congress 111th Congress

A resolution recognizing June 2009 as the first National Hemorrhagic Telangiecstasia (HHT) month, established to increase awareness of HHT, which is a complex genetic blood vessel disorder that affects approximately 70,000 people in the United States. [SR-141] [Healthcare ] [Public Health ] [Science ] [Funding ] [Grants ]
Expresses support for the designation of June 2009 as National Hereditary Hemorrhagic Telangiecstasia (HHT) month. Recognizes: (1) the need to pursue research to find better treatments and a cure for HHT; (2) the HHT Foundation International as the only U.S. advocacy organization working to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected; (3) the importance of comprehensive care centers in providing complete care and treatment for HHT patients; (4) that stroke, lung, and brain hemorrhages (continued...)

  

Sponsored by: Sen. Jeff Bingaman Referred To The Committee On Health, Education, Labor, And Pensions. (text Of Measure As Introduced: Cr S5332) on 05/11/2009

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Federal
US Congress 111th Congress

Eliminating Disparities in Diabetes Prevention Access and Care Act of 2009 [S.844] [Healthcare ] [Public Health ] [Race and Civil Rights ] [Grants ] [Funding ] [Children and Youth ]
Eliminating Disparities in Diabetes Prevention Access and Care Act of 2009 - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH) to provide for: (1) ongoing research and other activities with respect to pre-diabetes and diabetes in minority populations; and (2) programs to treat diabetes in minority populations. Requires the Director of NIH, through the National Center on Minority Health and Health Disparities and the National Diabetes Education Program, to provide for: (1) health care professionals' (continued...)

  

Sponsored by: Sen. Robert Menendez Read Twice And Referred To The Committee On Health, Education, Labor, And Pensions. on 04/21/2009

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Federal
US Congress 111th Congress

Congenital Heart Futures Act [S.621] [Healthcare ] [Public Health ] [Science ] [Funding ] [Grants ] [Children and Youth ]
Congenital Heart Futures Act - Amends the Public Health Service Act to authorize the Secretary of Health and Human Services (HHS), acting through the Director of the Centers for Disease Control and Prevention (CDC) in collaboration with appropriate congenital heart disease patient organizations and professional organizations, to conduct, support, and promote a comprehensive public education campaign to increase awareness regarding congenital heart disease, including the need for lifelong treatment. Authorizes the Secretary to: (1) award a grant (continued...)

  

Sponsored by: Sen. Robert Casey Sponsor Introductory Remarks On Measure. (cr S3180) on 03/17/2009

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Federal
US Congress 111th Congress

Advancing FASD Research, Prevention, and Services Act [S.3154] [Healthcare ] [Public Health ] [Alcoholic Beverages ] [Children and Youth ] [Criminal Justice ] [Education ] [Funding ] [Grants ] [Law Enforcement ] [Mental Health ] [Overdose Prevention ] [Science ] [Human Services ] [Crime ]
Advancing FASD Research, Prevention, and Services Act - Amends the Public Health Service Act to revise and extend the Fetal Alcohol Spectrum Disorders (FASD) programs (as renamed under this Act, previously the Fetal Alcohol Syndrome and Fetal Alcohol Effect programs). Directs the Secretary of Health and Human Services (HHS) to: (1) establish and carry out a research agenda for FASD; (2) facilitate surveillance, public health research, and prevention of FASD; and (3) continue the Interagency Coordinating Committee on Fetal Alcohol Syndrome. Requires (continued...)

  

Sponsored by: Sen. Lisa Murkowski Read Twice And Referred To The Committee On Health, Education, Labor, And Pensions. on 03/23/2010

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Federal
US Congress 111th Congress

Endocrine Disruption Prevention Act of 2009 [S.2828] [Public Health ] [Environmental ] [Science ] [Healthcare ]
Endocrine Disruption Prevention Act of 2009 - Amends the Public Health Service Act to require the Director of the National Institute of Environmental Health Sciences to establish the Endocrine Disruption Prevention Program, under which the Director shall: (1) conduct and support multidisciplinary research to improve the understanding of endocrine disruption; and (2) conduct workshops and fora on health effects associated with environmental agents that may affect the endocrine system. Requires the Director to establish an Endocrine Disruption Program (continued...)

  

Sponsored by: Sen. Dianne Feinstein Sponsor Introductory Remarks On Measure. (cr S12324) on 12/03/2009

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Federal
US Congress 111th Congress

Pregnant Women Support Act [S.270] [Healthcare ] [Reproductive Rights / Abortion ] [Family-Related Legislation ] [Public Health ] [Children and Youth ] [Human Services ] [Food ] [Education ] [Funding ] [Grants ] [Human Rights ] [Medicare and Medicaid ] [Insurance ] [Poverty ]
Pregnant Women Support Act - Authorizes the Secretary of Health and Human Services to make grants to increase public awareness of resources available to pregnant women to carry their pregnancy to term and new parents. Amends the Public Health Service Act to allow the Secretary to make grants for the purchase of ultrasound equipment for examinations of pregnant women. Prohibits a health insurance issuer offering individual coverage from imposing a preexisting condition exclusion or a waiting period or otherwise discriminating against a woman on (continued...)

  

Sponsored by: Sen. Robert Casey Sponsor Introductory Remarks On Measure. (cr S620-621) on 01/15/2009

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Federal
US Congress 111th Congress

21 Act [S.1762] [Healthcare ] [Science ] [Public Health ] [Disabilities ] [Grants ] [Human Services ] [Funding ]
Trisomy 21 Translational Research Parity Act of 2009 or the 21 Act - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH): (1) in coordination with the directors of specified national research institutes, to expand and intensify NIH programs with respect to translational research and related activities concerning Down syndrome; and (2) allocate specified funds among such institutes. Requires the Director to award grants and contracts for, and provide for the establishment of, at least six centers (continued...)

  

Sponsored by: Sen. Susan Collins Read Twice And Referred To The Committee On Health, Education, Labor, And Pensions. on 10/07/2009

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Federal
US Congress 111th Congress

Children's Access to Reconstructive Evaluation & Surgery (CARES) Act of 2009 [S.1235] [Healthcare ] [Insurance ] [Children and Youth ] [Public Health ]
Children's Access to Reconstructive Evaluation & Surgery (CARES) Act of 2009 - Amends the Public Health Service Act, the Employee Retirement Income Security Act of 1974 (ERISA), and the Internal Revenue Code to require a group health plan that covers surgical benefits to also cover outpatient and inpatient diagnosis and treatment of a congenital or developmental deformity, disease, or injury of a minor child (defined as child under the age of 22). Requires that such coverage: (1) be subject to pre-authorization or pre-certification requirements (continued...)

  

Sponsored by: Sen. Robert Casey Read Twice And Referred To The Committee On Health, Education, Labor, And Pensions. on 06/11/2009

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Federal
US Congress 111th Congress

A bill to amend title 10, United States Code, to provide for the treatment of autism under TRICARE. [S.1169] [Healthcare ] [Medicare and Medicaid ] [Defense ] [Public Health ] [Mental Health ] [Military ] [Insurance ] [Children and Youth ] [Disabilities ]
Revises TRICARE (a Department of Defense [DOD] managed health care program) to authorize treatment of autism spectrum disorders, if a health care professional determines that such treatment is medically necessary.

  

Sponsored by: Sen. Susan Collins Read Twice And Referred To The Committee On Armed Services. on 06/03/2009

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