Hereditary And Development Disorders
US Congress 114th Congress
A resolution designating December 3, 2015, as "National Phenylketonuria Awareness Day". [SR-324]
[Healthcare ]
[Public Health ]
[Human Services ]
[Disabilities ]
[Children and Youth ]
A resolution designating December 3, 2015, as "National Phenylketonuria Awareness Day". Designates December 3, 2015, as National Phenylketonuria Awareness Day. (Phenylketonuria or PKU is a rare, inherited metabolic disorder that can cause intellectual disability and other neurological problems.)
Sponsored by: Sen. Tammy Baldwin
Submitted In The Senate, Considered, And Agreed To Without Amendment And With A Preamble By Unanimous Consent. (consideration: Cr S8319; Text As Passed Senate: Cr S8307) on 12/02/2015
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A resolution designating May 19, 2015, as "National Schizencephaly Awareness Day". [SR-181]
[Healthcare ]
[Public Health ]
[Mental Health ]
[Disabilities ]
[Children and Youth ]
A resolution designating May 19, 2015, as "National Schizencephaly Awareness Day". Designates May 19, 2015, as National Schizencephaly Awareness Day. (Schizencephaly is a rare brain birth defect that can cause severe mental and physical health problems.)
Sponsored by: Sen. Heidi Heitkamp
Submitted In The Senate, Considered, And Agreed To Without Amendment And With A Preamble By Unanimous Consent. (consideration: Cr S3088; Text As Passed Senate: Cr S3071) on 05/19/2015
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Huntington's Disease Parity Act of 2015 [S.968]
[Healthcare ]
[Medicare and Medicaid ]
[Social Security ]
[Disabilities ]
[Public Health ]
Huntington's Disease Parity Act of 2015 Directs the Commissioner of Social Security, for purposes of determining cognitive, behavioral, and physical disability under titles II (Old Age, Survivors, and Disability Insurance) and XVI (Supplemental Security Income) of the Social Security Act (SSAct), to amend specified Listings of Impairments by providing medical and evaluation criteria for Huntington's Disease. Amends SSAct title II to waive the 24-month waiting period for coverage under the program under SSAct title XVIII (Medicare) for individuals
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Sponsored by: Sen. Dianne Feinstein
Read Twice And Referred To The Committee On Finance. on 04/16/2015
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Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2017 [S.3040]
[Labor, Jobs, Employment ]
[Healthcare ]
[Medicare and Medicaid ]
[Budget and Spending ]
[Education ]
[Veterans ]
[Public Health ]
[Mental Health ]
[Children and Youth ]
[Human Services ]
[Libraries ]
[Social Security ]
Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2017 Provides FY2017 appropriations for the Departments of Labor, Health and Human Services, Education, and several related agencies. Department of Labor Appropriations Act, 2017 TITLE I--DEPARTMENT OF LABOR Provides FY2017 appropriations for agencies and programs within the Department of Labor. Provides appropriations to the Employment and Training Administration for: Training and Employment Services, the Job Corps, Community Service Employment
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Sponsored by: Sen. Roy Blunt
Committee On Appropriations. Original Measure Reported To Senate By Senator Blunt. With Written Report No. 114-274. on 06/09/2016
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US Congress 114th Congress
Aidan's Law [S.2641]
[Healthcare ]
[Public Health ]
[Children and Youth ]
[Science ]
[Mental Health ]
Aidan's Law This bill amends the Public Health Service Act to require hospitals, child care centers, clinics, and similar institutions caring for infants who are 28 days or less of age to administer to such infants a test for adrenoleukodystrophy, a progressive genetic disease that can cause behavioral changes, seizures, and other neurological symptoms. To be eligible for funds under the Heritable Disorders Program, a state must establish adrenoleukodystrophy testing standards and procedures. These standards and procedures are subject to review
(continued...)
Sponsored by: Sen. Richard Blumenthal
Read Twice And Referred To The Committee On Health, Education, Labor, And Pensions. on 03/03/2016
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An Act Making Appropriations to Stop Regulatory Excess and for Other Purposes, 2016 [S.2132]
[Finance ]
[Telecommunications ]
[Consumer Protection ]
[Public Lands and National Parks ]
[Healthcare ]
[Labor, Jobs, Employment ]
[Medicare and Medicaid ]
[Budget and Spending ]
[Education ]
[Social Security ]
[Children and Youth ]
[Environmental ]
[Public Health ]
[Mental Health ]
[Funding ]
[Grants ]
[Law Enforcement ]
[Energy ]
[Insurance ]
An Act Making Appropriations to Stop Regulatory Excess and for Other Purposes, 2016 Provides FY2016 appropriations for financial services and general government; the Department of the Interior and the Environmental Protection Agency; the Departments of Labor, Health and Human Services, and Education; and several related agencies. Financial Services and General Government Appropriations Act, 2016 Department of the Treasury Appropriations Act, 2016 Provides appropriations to the Department of the Treasury, including the Internal Revenue Service. Executive
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Sponsored by: Sen. Lisa Murkowski
Read The Second Time. Placed On Senate Legislative Calendar Under General Orders. Calendar No. 251. on 10/06/2015
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Advancing FASD Research, Prevention, and Services Act [S.2060]
[Healthcare ]
[Public Health ]
[Alcoholic Beverages ]
[Children and Youth ]
[Science ]
[Criminal Justice ]
[Education ]
[Funding ]
[Grants ]
[Human Services ]
[Law Enforcement ]
[Mental Health ]
[Crime ]
Advancing FASD Research, Prevention, and Services Act This bill amends the Public Health Service Act to revise and extend the Fetal Alcohol Spectrum Disorders (FASD) programs (as renamed under this Act, previously the Fetal Alcohol Syndrome and Fetal Alcohol Effect programs). The Department of Health and Human Services (HHS) must: (1) carry out research on FASD; (2) facilitate surveillance, public health research, and prevention of FASD; and (3) continue the Interagency Coordinating Committee on Fetal Alcohol Syndrome. HHS must provide financial
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Sponsored by: Sen. Amy Klobuchar
Read Twice And Referred To The Committee On Health, Education, Labor, And Pensions. on 09/17/2015
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Advancing Hope Act of 2016 [S.1878]
[Healthcare ]
[Pharmaceuticals ]
[Public Health ]
[Children and Youth ]
Advancing Hope Act of 2016 This bill amends the Federal Food, Drug, and Cosmetic Act to expand the priority review voucher program for rare pediatric diseases to include treatments for sickle cell disease and pediatric cancers. The voucher program is extended by removing the provision terminating the program one year after the Food and Drug Administration's (FDA's) issuance of three rare pediatric disease vouchers. A voucher may not be issued for a rare pediatric disease product if a voucher was issued for the product as a tropical disease product.
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Sponsored by: Sen. Robert Casey
Became Public Law No: 114-229. (txt | Pdf) on 09/30/2016
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Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2016 [S.1695]
[Labor, Jobs, Employment ]
[Healthcare ]
[Medicare and Medicaid ]
[Budget and Spending ]
[Education ]
[Veterans ]
[Public Health ]
[Mental Health ]
[Children and Youth ]
[Human Services ]
[Funding ]
[Grants ]
[Social Security ]
[Disabilities ]
[Immigration ]
[Pensions ]
[Pharmaceuticals ]
[Poverty ]
Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2016 Provides FY2016 appropriations for the Departments of Labor, Health and Human Services, Education, and several related agencies. Department of Labor Appropriations Act, 2016 TITLE I--DEPARTMENT OF LABOR Provides FY2016 appropriations for agencies and programs within the Department of Labor. Provides appropriations to the Employment and Training Administration for: Training and Employment Services, Job Corps, Community Service Employment
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Sponsored by: Sen. Roy Blunt
Committee On Appropriations. Original Measure Reported To Senate By Senator Blunt. With Written Report No. 114-74. on 06/25/2015
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Avonte's Law Act of 2015 [S.163]
[Crime ]
[Disabilities ]
[Public Safety ]
[Children and Youth ]
[Human Services ]
[Mental Health ]
[Education ]
[Grants ]
[Funding ]
Avonte's Law Act of 2015 Amends the Omnibus Crime Control and Safe Streets Act of 1968 to authorize the Attorney General to make grants to law enforcement agencies to: (1) reduce the risk of injury and death relating to the wandering characteristics of some individuals with autism and other disabilities, and (2) safeguard the well-being of individuals with disabilities during interactions with law enforcement. Requires grant awards to be used to: (1) provide education and resources to law enforcement agencies, first responders, schools, clinicians,
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Sponsored by: Sen. Sheldon Whitehouse
Read Twice And Referred To The Committee On The Judiciary. on 01/13/2015
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Expressing support for the designation of the month of September 2016 as "Sickle Cell Disease Awareness Month" in order to educate communities across the United States about sickle cell disease and the need for research, early detection methods, effective treatments, and preventative care programs with respect to sickle cell disease. [HR-903]
[Healthcare ]
[Public Health ]
[Science ]
Expressing support for the designation of the month of September 2016 as "Sickle Cell Disease Awareness Month" in order to educate communities across the United States about sickle cell disease and the need for research, early detection methods, effective treatments, and preventative care programs with respect to sickle cell disease. Expresses support for the goals and ideals of Sickle Cell Disease Awareness Month. (Sickle cell disease is an inherited blood disorder than can lead to pain, anemia, infections, and stroke.) Encourages people to hold
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Sponsored by: Rep. Danny Davis
Introduced In House on 09/28/2016
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Expressing support for the designation of February 29, 2016, as "Rare Disease Day". [HR-627]
[Healthcare ]
[Public Health ]
Expressing support for the designation of February 29, 2016, as "Rare Disease Day". Expresses support for: (1) the designation of Rare Disease Day; and (2) a national and global commitment to developing new treatments, diagnostics, and cures for rare diseases and disorders.
Sponsored by: Rep. Raul Grijalva
Referred To The Subcommittee On Health. on 03/04/2016
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Expressing support for designation of May 30 as "National Bartter Syndrome Day". [HR-356]
[Healthcare ]
[Public Health ]
[Human Services ]
[Science ]
[Disabilities ]
Expressing support for designation of May 30 as "National Bartter Syndrome Day". Supports the designation of National Bartter Syndrome Day. (Bartter syndrome is caused by genetic defects that affect kidney function. Symptoms include muscle weakness and growth delay.)
Sponsored by: Rep. Tim Ryan
Introduced In House on 07/09/2015
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Calling for Sickle Cell Trait research. [HR-296]
[Healthcare ]
[Public Health ]
[Science ]
[Human Services ]
[Funding ]
[Grants ]
[Race and Civil Rights ]
Calling for Sickle Cell Trait research. Recognizes the challenges in addressing health outcomes among people with Sickle Cell Trait and Sickle Cell Disease. Encourages the medical community to make individuals aware of their Sickle Cell Trait status. Urges the Department of Health and Human Services to develop a public awareness campaign regarding the importance of individuals knowing their Sickle Cell Trait status and to expand access for screening and counseling. Commits to supporting research on Sickle Cell Trait and Sickle Cell Disease.
Sponsored by: Rep. Barbara Lee
Referred To The Subcommittee On Health. on 06/05/2015
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Expressing support for the designation of February 28, 2015, as "Rare Disease Day". [HR-109]
[Healthcare ]
[Public Health ]
Expressing support for the designation of February 28, 2015, as "Rare Disease Day". Expresses support for: (1) the designation of Rare Disease Day; and (2) a national and global commitment to developing new treatments, diagnostics, and cures for rare diseases and disorders.
Sponsored by: Rep. Raul Grijalva
Referred To The Subcommittee On Health. on 02/13/2015
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US Congress 114th Congress
Huntington's Disease Parity Act of 2015 [HB-842]
[Healthcare ]
[Medicare and Medicaid ]
[Social Security ]
[Disabilities ]
Huntington's Disease Parity Act of 2015 Directs the Commissioner of Social Security, for purposes of determining cognitive, behavioral, and physical disability under titles II (Old Age, Survivors, and Disability Insurance) and XVI (Supplemental Security Income) of the Social Security Act (SSAct), to amend specified Listings of Impairments by providing medical and evaluation criteria for Huntington's Disease. Amends SSAct title II to waive the 24-month waiting period for coverage under the program under SSAct title XVIII (Medicare) for individuals
(continued...)
Sponsored by: Rep. Ted Poe
Referred To The Subcommittee On Social Security. on 02/27/2015
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US Congress 114th Congress
Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2017 [HB-5926]
[Labor, Jobs, Employment ]
[Healthcare ]
[Medicare and Medicaid ]
[Budget and Spending ]
[Education ]
[Public Health ]
[Mental Health ]
[Children and Youth ]
[Human Services ]
[Social Security ]
[Pensions ]
[Pharmaceuticals ]
[Disabilities ]
[Senior Citizens ]
[Veterans ]
[Funding ]
[Grants ]
[Reproductive Rights / Abortion ]
[Ethics ]
[Law Enforcement ]
Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2017 Provides FY2017 appropriations for the Departments of Labor, Health and Human Services, Education, and several related agencies. Department of Labor Appropriations Act, 2017 TITLE I--DEPARTMENT OF LABOR Provides FY2017 appropriations for agencies and programs within the Department of Labor. Provides appropriations to the Employment and Training Administration for: Training and Employment Services, the Job Corps, Community Service Employment
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Sponsored by: Rep. Tom Cole
The House Committee On Appropriations Reported An Original Measure, H. Rept. 114-699, By Mr. Cole. on 07/22/2016
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US Congress 114th Congress
Health Equity and Accountability Act of 2016 [HB-5475]
[Healthcare ]
[Public Health ]
[Race and Civil Rights ]
Health Equity and Accountability Act of 2016
Sponsored by: Rep. Barbara Lee
Referred To The Subcommittee On Health, Employment, Labor, And Pensions. on 09/19/2016
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US Congress 114th Congress
Aidan's Law [HB-4692]
[Healthcare ]
[Public Health ]
[Children and Youth ]
[Science ]
[Mental Health ]
Aidan's Law This bill amends the Public Health Service Act to require hospitals, child care centers, clinics, and similar institutions caring for infants who are 28 days or less of age to administer to such infants a test for adrenoleukodystrophy, a progressive genetic disease that can cause behavioral changes, seizures, and other neurological symptoms. To be eligible for funds under the Heritable Disorders Program, a state must establish adrenoleukodystrophy testing standards and procedures. These standards and procedures are subject to review
(continued...)
Sponsored by: Rep. Yvette Clarke
Referred To The Subcommittee On Health. on 03/04/2016
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US Congress 114th Congress
Avonte's Law Act of 2015 [HB-4253]
[Crime ]
[Disabilities ]
[Public Safety ]
[Children and Youth ]
[Human Services ]
[Education ]
[Technology and Innovation ]
Avonte's Law Act of 2015 This bill amends the Omnibus Crime Control and Safe Streets Act of 1968 to authorize the Department of Justice (DOJ) to make grants to law enforcement agencies to: (1) reduce the risk of injury and death relating to the wandering characteristics of some individuals with autism and other disabilities, and (2) safeguard the well-being of individuals with disabilities during interactions with law enforcement. It requires grant awards to be used to: (1) provide education and resources to law enforcement agencies, first responders,
(continued...)
Sponsored by: Rep. Raul Grijalva
Referred To The Subcommittee On Crime, Terrorism, Homeland Security, And Investigations. on 01/15/2016