Hereditary And Development Disorders
US Congress 111th Congress
Congenital Heart Futures Act [HB-1570]
[Healthcare ]
[Public Health ]
[Science ]
[Funding ]
[Grants ]
[Children and Youth ]
Congenital Heart Futures Act - Amends the Public Health Service Act to authorize the Secretary of Health and Human Services (HHS), acting through the Director of the Centers for Disease Control and Prevention (CDC) in collaboration with appropriate congenital heart disease patient organizations and professional organizations, to conduct, support, and promote a comprehensive public education campaign to increase awareness regarding congenital heart disease, including the need for lifelong treatment. Authorizes the Secretary to: (1) award a grant
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Sponsored by: Rep. Barbara Lee
Referred To The Subcommittee On Health. on 03/18/2009
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Children's Access to Reconstructive Evaluation & Surgery (CARES) Act of 2009 [HB-1339]
[Healthcare ]
[Insurance ]
[Children and Youth ]
[Public Health ]
Children's Access to Reconstructive Evaluation & Surgery (CARES) Act of 2009 - Amends the Public Health Service Act, the Employee Retirement Income Security Act of 1974 (ERISA), and the Internal Revenue Code to require a group health plan that covers surgical benefits to also cover outpatient and inpatient diagnosis and treatment of a congenital or developmental deformity, disease, or injury of a minor child (defined as child under the age of 22). Requires that such coverage: (1) be subject to pre-authorization or pre-certification requirements
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Sponsored by: Rep. Raul Grijalva
Referred To The Subcommittee On Health, Employment, Labor, And Pensions. on 04/29/2009
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US Congress 116th Congress
A resolution expressing support for the designation of September 25, 2020, as "National Ataxia Awareness Day", and raising awareness of ataxia, ataxia research, and the search for a cure. [SR-717]
[Healthcare ]
[Public Health ]
[Science ]
This resolution expresses support for the designation of September 25, 2020, as National Ataxia Awareness Day to bring attention to this condition. Ataxia is a clinical manifestation that indicates degeneration or dysfunction of the brain that negatively affects coordination, precision, and accurate timing of physical movements.
Sponsored by: Sen. Elizabeth Warren
Senate Committee On Health, Education, Labor, And Pensions Discharged By Unanimous Consent. (consideration: Cr S6679) on 11/12/2020
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A resolution expressing support for the designation of September 2020 as "Sickle Cell Disease Awareness Month" in order to educate communities across the United States about sickle cell disease and the need for research, early detection methods, effective treatments, and preventative care programs with respect to complications from sickle cell disease and conditions related to sickle cell disease. [SR-706]
[Healthcare ]
[Public Health ]
[Race and Civil Rights ]
A resolution expressing support for the designation of September 2020 as "Sickle Cell Disease Awareness Month" in order to educate communities across the United States about sickle cell disease and the need for research, early detection methods, effective treatments, and preventative care programs with respect to complications from sickle cell disease and conditions related to sickle cell disease.
Sponsored by: Sen. Cory Booker
Submitted In The Senate, Considered, And Agreed To Without Amendment And With A Preamble By Unanimous Consent. on 09/17/2020
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US Congress 116th Congress
Continuing Access to In-Home IVIG Act [HB-7839]
[Healthcare ]
[Medicare and Medicaid ]
[Senior Citizens ]
Extends the Medicare Intravenous Immune Globulin (IVIG) Demonstration for an additional two years and expands the maximum number of participating beneficiaries from 4,000 to 6,500. The program provides bundled payments for items and services that are necessary for in-home IVIG administration for certain beneficiaries with primary immune deficiency disease.
Sponsored by: Rep. Robin Kelly
Introduced In House on 07/29/2020
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Medical Nutrition Equity Act of 2020 [S.3657]
[Healthcare ]
[Medicare and Medicaid ]
[Food ]
[Insurance ]
[Public Health ]
Expands coverage under Medicare, Medicaid, other specified federal health care programs, and private health insurance to include foods, vitamins, and individual amino acids that are medically necessary for the management of certain digestive and metabolic disorders and conditions.
Sponsored by: Sen. Robert Casey
Read Twice And Referred To The Committee On Health, Education, Labor, And Pensions. on 05/07/2020
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US Congress 116th Congress
Health Equity and Accountability Act of 2020 [HB-6637]
[Healthcare ]
[Public Health ]
[Race and Civil Rights ]
[Human Services ]
To improve the health of minority individuals, and for other purposes.
Sponsored by: Rep. Raul Grijalva
Referred To The Subcommittee For Indigenous Peoples Of The United States. on 07/09/2020
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US Congress 116th Congress
Robin Danielson Feminine Hygiene Product Safety Act of 2019 [HB-3865]
[Healthcare ]
[Public Health ]
[Science ]
[Consumer Protection ]
Requires the National Institutes of Health to conduct or support research on the extent to which components (including contaminants and substances used as fragrances, colorants, dyes, and preservatives) in feminine hygiene products pose health risks to women who use the products or to the children of women who use the products during or before pregnancy.
Sponsored by: Rep. Carolyn Maloney
Referred To The Subcommittee On Health. on 07/22/2019
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Expressing support for the designation of the last day of February each year as "Rare Disease Day". [HR-840]
[Healthcare ]
[Public Health ]
This resolution expresses support for (1) the designation of Rare Disease Day; and (2) a national and global commitment to developing new treatments, diagnostics, and cures for rare diseases and disorders.
Sponsored by: Rep. Barbara Lee
Introduced In House on 02/07/2020
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Advancing FASD Research, Prevention, and Services Act [HB-5790]
[Healthcare ]
[Public Health ]
[Science ]
[Human Services ]
[Children and Youth ]
[Education ]
[Grants ]
[Funding ]
Reestablishes and expands programs for fetal alcohol spectrum disorders (FASD). The Department of Health and Human Services must establish a research agenda on FASD, facilitate and disseminate findings on public health surveillance and research to prevent FASD, and establish multiple grant programs. Depending on the specific grant program, eligible grantees may include states, tribes and tribal organizations, public and private nonprofits, and educational institutions. Among other purposes, the grants support research on the diagnosis, intervention,
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Sponsored by: Rep. Don Young
Introduced In House on 02/06/2020
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US Congress 116th Congress
Advancing FASD Research, Prevention, and Services Act [S.2879]
[Healthcare ]
[Public Health ]
[Science ]
[Children and Youth ]
[Human Services ]
[Education ]
[Grants ]
[Funding ]
[Mental Health ]
Reestablishes and expands programs for fetal alcohol spectrum disorders (FASD). The Department of Health and Human Services must establish a research agenda on FASD, facilitate and disseminate findings on public health surveillance and research to prevent FASD, and establish multiple grant programs. Depending on the specific grant program, eligible grantees may include states, tribes and tribal organizations, public and private nonprofits, and educational institutions. Among other purposes, the grants support research on the diagnosis, intervention,
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Sponsored by: Sen. Amy Klobuchar
Read Twice And Referred To The Committee On Health, Education, Labor, And Pensions. on 11/18/2019
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US Congress 116th Congress
A resolution expressing support for the designation of September 2019 as "Sickle Cell Disease Awareness Month" in order to educate communities across the United States about sickle cell disease and the need for research, early detection methods, effective treatments, and preventative care programs with respect to complications from sickle cell disease and conditions related to sickle cell disease. [SR-373]
[Healthcare ]
[Public Health ]
[Science ]
A resolution expressing support for the designation of September 2019 as "Sickle Cell Disease Awareness Month" in order to educate communities across the United States about sickle cell disease and the need for research, early detection methods, effective treatments, and preventative care programs with respect to complications from sickle cell disease and conditions related to sickle cell disease.
Sponsored by: Sen. Cory Booker
Submitted In The Senate, Considered, And Agreed To Without Amendment And With A Preamble By Unanimous Consent. on 10/22/2019
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Calling for sickle cell trait research, surveillance, and public education and awareness, and for other purposes. [HR-606]
[Healthcare ]
[Public Health ]
[Science ]
[Education ]
[Human Services ]
[Funding ]
[Grants ]
Calling for sickle cell trait research, surveillance, and public education and awareness, and for other purposes.
Sponsored by: Rep. Barbara Lee
Referred To The Subcommittee On Health. on 09/30/2019
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US Congress 116th Congress
The Newborn Screening Saves Lives Reauthorization Act of 2019 [S.2158]
[Healthcare ]
[Public Health ]
[Children and Youth ]
[Science ]
[Funding ]
[Grants ]
Expands and reauthorizes through FY2024 various programs related to the screening of newborns for heritable diseases, including (1) grants to local public health agencies, (2) the Advisory Committee on Heritable Disorders in Newborns and Children, (3) assessments of the effectiveness of such screenings, and (4) research into new screening technologies.
Sponsored by: Sen. Robert Casey
Read Twice And Referred To The Committee On Health, Education, Labor, And Pensions. on 07/18/2019
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US Congress 116th Congress
Huntington’s Disease Parity Act of 2019 [HB-2770]
[Healthcare ]
[Medicare and Medicaid ]
[Disabilities ]
[Public Health ]
[Senior Citizens ]
Waives, for individuals diagnosed with Huntington's Disease, the 24-month waiting period for Medicare coverage. Current law generally applies this waiting period to individuals deemed eligible for Old-Age, Survivors, and Disability Insurance benefits.
Sponsored by: Rep. Sean Maloney
Introduced In House on 05/15/2019
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Huntington’s Disease Parity Act of 2019 [S.1476]
[Healthcare ]
[Medicare and Medicaid ]
[Disabilities ]
[Public Health ]
[Senior Citizens ]
Waives, for individuals diagnosed with Huntington's Disease, the 24-month waiting period for Medicare coverage. Current law generally applies this waiting period to individuals deemed eligible for Old-Age, Survivors, and Disability Insurance benefits.
Sponsored by: Sen. Susan Collins
Read Twice And Referred To The Committee On Finance. on 05/15/2019
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US Congress 116th Congress
Medical Nutrition Equity Act of 2019 [HB-2501]
[Healthcare ]
[Medicare and Medicaid ]
[Food ]
[Insurance ]
[Public Health ]
Expands coverage under Medicare, Medicaid, other specified federal health-care programs, and private health insurance to include foods, vitamins, and individual amino acids that are medically necessary for the management of certain digestive and metabolic disorders and conditions.
Sponsored by: Rep. Barbara Lee
Referred To The Subcommittee On Military Personnel. on 05/03/2019
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US Congress 116th Congress
Global Brain Health Act of 2019 [HB-2077]
[Healthcare ]
[International ]
[Public Health ]
[Mental Health ]
[Science ]
Establishes programs to provide international support to address (1) autism spectrum disorders (ASD); (2) hydrocephalus (i.e., the accumulation of fluid in the brain commonly occurring in infants and young children); and (3) Alzheimer's and other forms of dementia.Specifically, the U.S. Agency for International Development must establish the Global Autism Assistance Program to (1) support local service providers and advocacy groups focused on ASD in developing countries and (2) train parents and teachers who work with children with ASD.In addition,
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Sponsored by: Rep. Karen Bass
Referred To The Subcommittee On Health. on 04/04/2019
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US Congress 116th Congress
Medicaid Services Investment and Accountability Act of 2019 [HB-1839]
[Healthcare ]
[Medicare and Medicaid ]
[Budget and Spending ]
[Pharmaceuticals ]
[Public Health ]
[Mental Health ]
[Human Services ]
Alters several Medicaid programs and funding provisions. (Sec. 2) The bill temporarily extends the applicability of Medicaid eligibility criteria that protect against spousal impoverishment for recipients of home- and community-based services. (Sec. 3) The bill also establishes a state Medicaid option to provide for medical assistance with respect to coordinated care provided through a health home (i.e., a designated provider or team of health-care professionals) for children with medically complex conditions. States must determine payment methodologies
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Sponsored by: Rep. Kathy Castor
Became Public Law No: 116-16. (txt | Pdf) on 04/18/2019
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Expressing support for designation of May 30 as "National Bartter Syndrome Day". [HR-181]
[Healthcare ]
[Public Health ]
[Science ]
This resolution supports the designation of National Bartter Syndrome Day. (Bartter syndrome is caused by genetic defects that affect kidney function. Symptoms include muscle weakness and growth delay.)
Sponsored by: Rep. Tim Ryan
Introduced In House on 03/06/2019