Neurological Disorders

Federal
US Congress 116th Congress

ALS Disability Insurance Access Act of 2019 [S.578] [Healthcare ] [Insurance ] [Social Security ] [Disabilities ] [Public Health ]
Eliminates the five-month waiting period for disability benefits under the Old Age, Survivors, and Disability Insurance program for individuals with amyotrophic lateral sclerosis (a progressive neurodegenerative disease, also known as Lou Gehrig's disease, that affects nerve cells in the brain and spinal cord). Under current law, individuals must wait five months after becoming disabled before their disability insurance benefit payments may begin.

  

Sponsored by: Sen. Jack Reed Became Public Law No: 116-250. on 12/22/2020

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Federal
US Congress 116th Congress

ACE Kids Act of 2019 Advancing Care for Exceptional Kids Act of 2019 [HB-1226] [Healthcare ] [Medicare and Medicaid ] [Children and Youth ]
Establishes a state Medicaid option to provide for medical assistance with respect to coordinated care provided through a health home (i.e., a designated provider or team of health-care professionals) for children with medically complex conditions. States must determine payment methodologies in accordance with specified requirements; payments also temporarily qualify for an enhanced federal matching rate.

  

Sponsored by: Rep. Sean Maloney Referred To The Subcommittee On Health. on 02/15/2019

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Federal
US Congress 116th Congress

Autism CARES Act of 2019 Autism Collaboration, Accountability, Research, Education, and Support Act of 2019 [S.427] [Healthcare ] [Science ] [Public Health ] [Mental Health ] [Human Services ] [Education ] [Disabilities ] [Children and Youth ]
Reauthorizes through FY2024 and revises several programs and activities relating to autism spectrum disorder (ASD). Among other things, the bill reauthorizes provisions relating to (1) expanded ASD research at the National Institutes of Health; (2) ASD education, early detection, and intervention activities supported by the Health Resources and Services Administration; and (3) the Interagency Autism Coordinating Committee. The bill also generally revises the scope of such programs and activities to encompass ASD individuals of all ages, rather than (continued...)

  

Sponsored by: Sen. Robert Casey Read Twice And Referred To The Committee On Health, Education, Labor, And Pensions. on 02/07/2019

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Federal
US Congress 116th Congress

Chronic Wasting Disease Transmission in Cervidae Study Act [S.382] [Agriculture ] [Animals ] [Science ] [Public Health ] [Food ]
Requires the Animal and Plant Health Inspection Service and the U.S. Geological Survey to contract the National Academy of Sciences to study the predominant pathways and mechanisms of the transmission of chronic wasting disease in wild, captive, and farmed populations of deer, elk, reindeer, and moose populations in the United States.

  

Sponsored by: Sen. Susan Collins Read Twice And Referred To The Committee On Agriculture, Nutrition, And Forestry. (sponsor Introductory Remarks On Measure: Cr S1135-1136) on 02/07/2019

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Federal
US Congress 116th Congress

Servicemembers and Veterans Empowerment and Support Act of 2019 [S.374] [Veterans ] [Healthcare ] [Military ]
A bill to amend title 38, United States Code, to expand health care and benefits from the Department of Veterans Affairs for military sexual trauma, and for other purposes.

  

Sponsored by: Sen. Bernard Sanders Read Twice And Referred To The Committee On Veterans' Affairs. on 02/07/2019

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US Congress 116th Congress

Agent Orange Exposure Fairness Act of 2019 [S.332] [Veterans ] [Healthcare ] [Public Health ]
Requires the Government Accountability Office (GAO) to brief Congress and report on the efforts of the Department of Veterans Affairs (VA) to provide benefits to veterans who served in the Republic of Vietnam between January 9, 1962, and May 7, 1975, and have specified diseases associated with exposure to certain herbicide agents (i.e., chloracne, porphyria cutanea tarda, or acute or subacute peripheral neuropathy). The VA must implement recommendations from the GAO report related to the adjudication of claims for benefits for veterans with the (continued...)

  

Sponsored by: Sen. Sheldon Whitehouse Committee On Veterans' Affairs. Reported By Senator Moran With An Amendment In The Nature Of A Substitute And An Amendment To The Title. Without Written Report. on 09/15/2020

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Federal
US Congress 116th Congress

VA Medicinal Cannabis Research Act of 2019 [S.179] [Cannabis ] [Healthcare ] [Veterans ] [Public Health ] [Mental Health ] [Pharmaceuticals ]
Requires the Department of Veterans Affairs (VA) to conduct a clinical trial of the effects of medical-grade cannabis on the health outcomes of covered veterans diagnosed with chronic pain, and also those diagnosed with post-traumatic stress disorder. Covered veterans are those who are enrolled in the VA patient enrollment system for hospital care and medical services.

  

Sponsored by: Sen. Edward Markey Read Twice And Referred To The Committee On Veterans' Affairs. on 01/17/2019

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Federal
US Congress 116th Congress

Collaborative Academic Research Efforts for Tourette Syndrome Act of 2019 [HB-1131] [Healthcare ] [Science ] [Public Health ] [Mental Health ] [Funding ] [Grants ]
Requires the National Institutes of Health (NIH) to expand, intensify, and coordinate NIH research on Tourette syndrome. The NIH must (1) develop a system to collect data on Tourette syndrome, including epidemiological information and data on the availability of medical and social services for individuals with Tourette syndrome and their families; (2) support Collaborative Research Centers for Tourette Syndrome to conduct basic and clinical research; (3) award grants for research on Tourette syndrome symptoms and treatment options for particular (continued...)

  

Sponsored by: Rep. Eleanor Norton Introduced In House on 02/08/2019

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US Congress 116th Congress

Servicemembers and Veterans Empowerment and Support Act of 2019 [HB-1092] [Veterans ] [Healthcare ] [Military ]
To amend title 38, United States Code, to expand health care and benefits from the Department of Veterans Affairs for military sexual trauma, and for other purposes.

  

Sponsored by: Rep. Raul Grijalva Referred To The Subcommittee On Disability Assistance And Memorial Affairs. on 03/01/2019

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Federal
US Congress 116th Congress

Autism CARES Act of 2019 Autism Collaboration, Accountability, Research, Education, and Support Act of 2019 [HB-1058] [Healthcare ] [Science ] [Public Health ] [Mental Health ] [Human Services ] [Disabilities ] [Education ] [Children and Youth ]
Reauthorizes through FY2024 and revises several programs and activities relating to autism spectrum disorder (ASD). Specifically, the bill reauthorizes provisions relating to (1) expanded ASD research at the National Institutes of Health; (2) the collection of state-level ASD data by the Centers for Disease Control and Prevention; (3) ASD education, early detection, and intervention activities supported by the Health Resources and Services Administration; and (4) the Interagency Autism Coordinating Committee. The bill also generally revises the (continued...)

  

Sponsored by: Rep. Sean Maloney Became Public Law No: 116-60. (txt | Pdf) on 09/30/2019

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Federal
US Congress 116th Congress

North American Wetlands Conservation Extension Act [HB-925] [Environmental ] [Public Lands and National Parks ] [Animals ] [Water ] [Funding ] [Grants ]
Reauthorizes the North American Wetlands Conservation Act through FY2024.

  

Sponsored by: Rep. Mike Johnson On Motion To Concur In The Senate Amendments With An Amendment Agreed To By The Yeas And Nays: 214 - 207 (roll No. 214). (text: Cr H5202-5417) on 10/01/2020

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US Congress 116th Congress

Chronic Wasting Disease Transmission in Cervidae Study Act [HB-837] [Agriculture ] [Animals ] [Science ] [Public Health ] [Food ]
Requires the Animal and Plant Health Inspection Service and the U.S. Geological Survey to contract the National Academy of Sciences to study the predominant pathways and mechanisms of the transmission of chronic wasting disease in wild, captive, and farmed populations of deer, elk, reindeer, and moose populations in the United States.

  

Sponsored by: Rep. Steve King Referred To The Subcommittee On Livestock And Foreign Agriculture. on 02/15/2019

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Federal
US Congress 116th Congress

To direct the Secretary of Veterans Affairs to conduct and support research on the efficacy and safety of medicinal cannabis, and for other purposes. [HB-747] [Cannabis ] [Healthcare ] [Veterans ] [Public Health ] [Mental Health ] [Science ]
Requires the Department of Veterans Affairs (VA) to conduct and support research on the efficacy and safety of certain forms of cannabis and cannabis delivery for veterans enrolled in the VA health care system and diagnosed with conditions such as chronic pain or post-traumatic stress disorder. Collected data shall be preserved in a manner that facilitates further research.

  

Sponsored by: Rep. David Roe Introduced In House on 01/24/2019

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Federal
US Congress 116th Congress

VA Medicinal Cannabis Research Act of 2019 [HB-712] [Cannabis ] [Healthcare ] [Veterans ] [Public Health ] [Mental Health ] [Pharmaceuticals ]
Requires the Department of Veterans Affairs (VA) to conduct a clinical trial of the effects of medical-grade cannabis on the health outcomes of covered veterans diagnosed with chronic pain, and also those diagnosed with post-traumatic stress disorder. Covered veterans are those who are enrolled in the VA patient enrollment system for hospital care and medical services.

  

Sponsored by: Rep. Sean Maloney Committee Consideration And Mark-up Session Held. on 03/12/2020

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Federal
US Congress 116th Congress

Palliative Care and Hospice Education and Training Act [HB-647] [Healthcare ] [Education ] [Public Health ] [Science ] [Funding ] [Grants ] [Human Services ] [Medicare and Medicaid ]
Requires the Department of Health and Human Services (HHS) to take a series of actions relating to palliative-care training. Specifically, HHS must provide support for Palliative Care and Hospice Education Centers. The centers must improve the training of health professionals in palliative care and establish traineeships for individuals preparing for advanced-education nursing degrees, social-work degrees, or advanced degrees in physician-assistant studies in palliative care. HHS may provide support to medical schools, teaching hospitals, and graduate (continued...)

  

Sponsored by: Rep. Alexander Mooney Received In The Senate And Read Twice And Referred To The Committee On Health, Education, Labor, And Pensions. on 10/29/2019

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Federal
US Congress 116th Congress

Lawrence J. Hackett Jr. Vietnam Veterans Agent Orange Fairness Act [HB-637] [Veterans ] [Healthcare ] [Military ] [Public Health ]
Requires the Department of Veterans Affairs to establish a task force to make recommendations about the care and compensation that should be provided to veterans who have been exposed to Agent Orange, their spouses, and multiple generations of their offspring.

  

Sponsored by: Rep. Collin Peterson Referred To The Subcommittee On Disability Assistance And Memorial Affairs. on 02/08/2019

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Federal
US Congress 116th Congress

Ellie Helton, Lisa Colagrossi, Teresa Anne Lawrence, and Jennifer Sedney Focused Research Act Ellie’s Law [HB-594] [Healthcare ] [Science ] [Public Health ] [Funding ] [Grants ]
Authorizes appropriations for the National Institute of Neurological Disorders and Stroke to conduct or support research on unruptured brain aneurysms in a patient population diversified by age, sex, and race.

  

Sponsored by: Rep. Raul Grijalva Referred To The Subcommittee On Health. on 01/31/2019

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Federal
US Congress 116th Congress

Agent Orange Exposure Fairness Act [HB-566] [Veterans ] [Healthcare ] [Military ] [Public Health ]
Expands eligibility for a presumption of service-connection for veterans exposed to certain herbicide agents (e.g., Agent Orange) during military service in Vietnam. Specifically, the bill removes the manifestation period required for the presumption of service-connection for chloracne and porphyria cutanea tarda. Additionally, the bill provides statutory authority for a presumption of service-connection for certain cases of acute and subacute peripheral neuropathy without a manifestation period. Under a presumption of service-connection, specific (continued...)

  

Sponsored by: Rep. Raul Grijalva Referred To The Subcommittee On Disability Assistance And Memorial Affairs. on 02/01/2019

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Federal
US Congress 116th Congress

Aidan’s Law [HB-534] [Healthcare ] [Public Health ] [Children and Youth ]
Authorizes newborn screenings for adrenoleukodystrophy (also known as ALD), which is a hereditary condition that damages the insulating membrane of nerve cells in the brain. The bill authorizes hospitals, child care centers, clinics, and similar institutions to test newborns for ALD in accordance with state protocols; such protocols must be approved by the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children. The bill also reauthorizes for FY2020-FY2023 the heritable disorders screening program for newborns and children (continued...)

  

Sponsored by: Rep. Nita Lowey Referred To The Subcommittee On Health. on 01/31/2019

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Federal
US Congress 116th Congress

Neuromyelitis Optica Consortium Act [HB-321] [Healthcare ] [Science ] [Public Health ] [Funding ] [Grants ] [Disabilities ]
Requires the National Institutes of Health to establish, administer, and coordinate a national consortium on neuromyelitis optica (NMO), which is a neurological disease that can cause blindness and paralysis. The consortium must award grants for research on the causes of, and the risk factors and biomarkers associated with, NMO; assemble a panel of experts to provide guidance and recommendations on research design and protocols; and designate a central laboratory to collect and analyze data from this research and to make the data and analysis available (continued...)

  

Sponsored by: Rep. Barbara Lee Referred To The Subcommittee On Health. on 01/31/2019

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